A diagnosis of dementia is valuable when speaking to support agencies.
You also need to be honest with yourself – especially if you are committed to being an at-home caregiver. Currently, there is no cure for dementia. Many family members choose to take on caregiver responsibilities – especially in the early stages of dementia’s development. As the disease progresses, continue to ask yourself these questions:
- Do you have the skills and tools to take care of someone in this stage of Alzheimer’s?
- What, if any, revisions do you need to make your home safe and comfortable – e.g., space for a hospital bed? Grab bars in the bathroom/shower?
- As the disease progresses, can you keep up with the demands of care – physically, emotionally, mentally and financially? No two days will be alike. A good day today does not mean it will be a good day tomorrow.
- Do you have friends/family you can rely on to help?
- Is there someone who calls regularly to be sure all is o.k.?
- Are you prepared to make different decisions, if in-home care becomes more difficult to deliver?
Keep your knowledge of resources current. Date everything. Keep yourself healthy. It is o.k. to change your mind as you gain new information and updated experiences.
Key notes
Is your home as safe as you can make it…with proper lighting, rugs that don’t slip, security/alarms, etc. Our Pine Knoll Shores Police and Fire professionals are well prepared to review your home for safety issues and make suggestions. All this for free.
Fire Department Jerry Bowden at 252-247-2268 or 252-247-2474, ext.30;
Police Chief Ryan Thompson at [email protected] or 252-247-2474, ext.20
Special needs? Medically fragile? Plan ahead for an emergency evacuation
Have you notified public service people to be prepared to aid your evacuation in case of a major storm? See our website www.pkscouncilonaging.com for detailed information.
24/7 Hotline 800 272 3900 is supported by the Alzheimer’s Association (E.N.C. Chapter, Raleigh)
Pine Knoll Shores Council on Successful Aging
Caregiver discussion groups
Groups are not created equally.
Many groups are not condition specific. That is, each group includes caregivers across different diagnoses, e.g., Parkinson’s, Alzheimer’s, or caregiving in general.
The groups may meet in person or virtually.
Morehead City – In person meeting
First Presbyterian Church, 1604 Arendell – Carteret County
This in-person caregiver group meets once a month on the 4th Thursday of the month at 11:30 to 1 pm. No charge.
If the caregiver’s patient can be left alone for a while, the patient can sit in the parlor while the caregiver attends the group.
The group also invites speakers to present information on specific topics related to caregiving in the home.
Morehead City – Virtual group
Via Zoom. Contact – January Brown moderator @ 252-638-3185, ext. 3011
The group meets every Thursday at 1 p.m. Not dementia specific. No charge.
Carteret County – Virtual group
Via Zoom. Contact – Lauren Donnachie facilitator: [email protected]
Group meets every Thursday at 1 p.m. All participants are caregivers of a loved one with some sort of dementia. Conversation leads into topics of discussion. The group also invites speakers to present information on specific topics related to caregiving in the home.
New Bern – In person
Contact Nancy Willett moderator @ 252-636-0831
The group meets the 1st Wednesday of every month at 1 p.m. Not dementia specific. No charge.
Patient support group: P.E.R.C. – Early Stages
P.E.R.C. is a support group for individuals with Early Stages of Alzheimer’s or dementia; giving them the tools to navigate the disease with their caregivers.
P.E.R.C. stands for:
P – Peer Support
E – Education
R – Resources
C – Caregiver Support
At the support group, you will enjoy a safe atmosphere to converse with those who are in similar situations. The agency is currently taking names of those wishing to participate. Meetings for P.E.R.C. will meet the 3rd Thursday of each month at 10:00 am. The meetings will be held at the George Street Senior Center – 811 George St, New Bern, NC 28560; Please call 252-638-1790 with any questions and ask for Alissa. Website: Support Groups (weebly.com)
Memory cafes
Memory cafés, often called Alzheimer’s cafés, are welcoming social gatherings for people living with dementia and their family members, friends, and professional caregivers. Dr. Bere Miesen started the first café in Holland in 1997, and since then they have spread as a social movement throughout many countries. Cafés meet in many types of locations, such as libraries, community centers, restaurants, and houses of worship. Cafés should fit the interests, needs, language, and culture of their local community, so each café is unique. Their main purpose is to provide a welcoming, stigma-free social setting where people living with dementia and their care partners can meet others and enjoy time together. Cafés aim to decrease the social isolation that often accompanies dementia.
Memory Café – Craven County
Meets in person the 1st Monday of each month from 4-6:30 pm. Reservations are required for attendance. No charge.
A unique Alzheimer’s/Dementia Support Group experience for caregivers and their loved ones. Session begins in a café style setting with dinner provided at 4:00 pm. The break away session begins shortly after dinner. Caregivers attend the support group, while trained staff members provide supervision to loved ones as they interact with their peer group during games and activities. Togetherness time at the end of the session provides activities the participant and the caregiver may work together to complete in a comfortable social setting.
Reservation deadline is the last Friday of the prior month by noon. For more information contact us at 252 638-1790. The Memory Café is a part of Craven County Senior Services at 811 George Street, New Bern, NC.
In home non-medical patient care: Home Helpers of the Crystal Coast
Home Helpers of the Crystal Coast is a State of North Carolina licensed In-Home Care Agency providing non-medical services to individuals who need help to stay comfortably and safely in their own home as long as possible. These services also provide much needed respite for caregivers.
Currently based in Morehead City, they operate in Carteret, Craven, Onslow counties providing these services:
- Personal Care and Hygiene
- Activities of Daily Living Assistance (ADLs)
- Companionship
- Light Housekeeping
- Meal Preparation
- Transportation and Errand Services (this can be a ‘standalone’ service as well)
Special notes
Long Term Care Insurance (LTC). LTC insurance covers these types of services. Home Helpers will assist those who have this type of insurance understand their benefits, file all paperwork on their behalf, and invoice and collect directly from the insurance carrier when applicable. They provide as much or as little assistance with this process at no additional charge.
Veterans Benefits. As a VA Credentialed provider of the Homemaker and Home Health Aide Care Benefit (which many Veterans are unaware of), Home Helpers will explain these program benefits, how a Veteran would qualify AND support them throughout the submission of claims and approval process. For those that qualify, the VA will pay for in home care benefits with absolutely no cost to Veteran. One of Home Helpers top priority is helping veterans obtain the services they are entitled to.
The Home Helpers team can be reached at 252-622-4690 – calls and texts reach all of their cellphones. Home Helpers will be moving their offices to 1615 Live Oak St. Beaufort, NC 28516 in the late summer/early fall. Service areas will not change.
In home medical patient care: 3HC Home Health and Hospice Care
3HC Home Health is a branch of medical and care services for those who need short-term acute care, but aren’t always able to leave their homes. Patient care includes services and procedures that were previously only available in hospitals. It is accredited by CHAP (Community Health Accreditation Partner) in addition to being Medicare and Medicaid certified. 3HC serves select counties in central and eastern North Carolina (including Carteret) from the Triangle area to the coast.
3HC offers three main categories of home health services including:
- Nursing and Aide Services – covers any medical procedures and treatments the patient requires.
- Medical social work – approaches the emotional and social pressures of illness and injuries.
- Rehabilitative therapies – tailored specifically to the patient’s needs. Hospitalization may prompt the need for rehabilitative therapies; surgery, disabilities, or even age-related circulation problems and arthritis can be helped through rehabilitation:
- Physical therapy – often needed after an injury or illness.
- Occupational therapy – similar to physical therapy, but concentrates on detailed movements of activities performed daily, like bathing, grooming, dressing, laundry, and meal prep.
- Speech therapy – comprehensive addressing of problems associated with expression, from the need to physically swallow to the ability to speak more clearly.
3HC is located in Goldsboro, NC at 2402 Wayne Memorial Drive. They can be reached at 1-800-692-4442.
Physician specialists
Gerontologists. A Google search of Carteret and Craven gerontologists yielded only one verified name – Dr. Amy Sue Charlesworth. When I called the number given, her voice message confirmed she works only with individuals who are patients of Crystal Bluffs long-term medical facility. She is also listed on the roster of the Carteret hospital. She can be reached at 252.725.9555.
Dr. Robert John Fisher was initially identified as a gerontologist in Craven County. However, his current listing describes him as a Hospice, Palliative Care physician. He is associated with Craven Regional Hospital and Carolina East. Dr. Fisher can be reached at 252.514.2061.
Wendy S. Fulford is a geriatric nurse practitioner at Craven Regional Hospital. She can be reached at 252.638.2273.
Neurologists. A Google search identified several practicing neurologists in the area. Enter neurologists in Carteret County NC or neurologists in Craven County NC for a complete listing of choices.
Tech tools to preserve a quality of life
Dementia takes many forms and knows no social, economic or geographical boundaries. Many of these behaviors erode the quality of life for such patients and test the strengths of caregivers. A niche of forward-thinking companies/entrepreneurs have turned their attention to improving the quality of life of dementia patients shredded by the hours in the day. The impact is promising.
The usefulness of these tools is related to the patients’ diagnostic stage as well as the caregivers’ comfort level with technology, i.e., just because a patient has a phone, there is no guarantee they will know how to use it if they find themselves alone.
The innovations are mentioned here in the belief that the designs of such tools will continue to improve; technological advantages are fast paced. Therefore, the mention of these types of tools is brief and will depend on your need and interest to search for the most current versions.
The Apple Watch
(Applications may vary by choice of watch/generation model). Apple has led the way in the development of a multifunctional watch and is among the best known, but other brands boast similar offerings. Given the market prominence of the Apple brand, the Apple Watch is the one profiled here.
Right out of the box, an Apple Watch can help keep you healthy, deliver notifications, make calls, send texts, run simple apps, and even save your life. Some versions can be Walkie-Talkies. The built in emphasis is on communicating quickly. The built in microphone facilitates its use.
Importantly, critical medical notes can be accessed on the phone. If a patient is alone or incapacitated, this information can quickly direct EMS/medical professionals to the right course of action.
In an emergency, the Apple Watch makes it fast and easy to call for help. All you need to do is hold down the side button for a few seconds until three options pop up. Sliding the SOS icon to the right will activate an emergency call. Regardless of where in the world you are, the Apple Watch will call the appropriate phone number for emergency services. While you may be used to dialing 911, the Apple Watch is smart enough to dial the proper number and even key in any confirmation number local authorities require.
Not all of the watch functions are clearly of value to dementia patients and/or caregivers. However, it is worth mentioning that Apple Watches are also designed to keep the wearer healthy and safe by monitoring safe hearing levels and heart rates, taking an electrocardiogram, and tracking your fitness.
The newest models include new compass layouts, improved medications reminders, better sleep tracking, and more dynamic watch faces. Available map apps can keep you from getting lost, improve your productivity, and entertain. Specific features and apps are dependent on the power/generation of the watch purchased.
Google Home
The North Carolina Eastern Council – Area Agency on Aging highlighted the value of the Google Home device as an assistance tool for older adults for home safety and routine management tasks (see: Google-Home-senior-info.-sheet.pdf (eccog.org)). Its value has extended beyond the general population to individuals with dementia.
Google Home is a voice-controlled cloud-based voice service speaker that answers questions, plays music, delivers the news, delivers weather reports, makes calls, interacts with smart home devices and performs many other tasks. Google Home works through Wi-Fi and there are no monthly fees. Users must have Wi-Fi and a smartphone or tablet to set up devices.
The emerging concept of aging in place supports older adults in their independence, socialization, and the right to choose to live at home and in their communities. With the growth of technology, aging in place is becoming more of a reality. Embracing technology allows individuals and their caregivers a resource for home safety and routine management. Devices allow individuals to communicate without a handheld device and with the ease of verbal commands, such as: asking questions; setting appointment/medication reminders; turning lights on/off; turning thermostat up/down; turning the television on/off; and making phone calls.
Examples of specific questions to demonstrate how Google Home Assist can work begins with addressing the device, e.g., “Hey Google, what is Tylenol used for?” “Hey Google, call 252-121-3434,” “Hey Google, what time is it?” and “Hey Google, what day is it?”
Further, Google Home’s broadcast feature enables users to use a Google home device, your phone, or a tablet to engage in two-way communication. Users can use the broadcast feature in another location, such as a parents’ home through a smartphone or tablet.
To broadcast/intercom features among your devices, wake up your ‘personal assistant’ by saying, “Hey/Ok Google, broadcast”. The device will respond with “What’s the message?” Once you state your message (example: It’s dinner time), your message will then broadcast through all available devices. To send a reply requires the same sequence of voice commands. In this way, the ‘intercom’ acts as a two-way communicator like verbal texting.
Before you use the broadcast feature on your smartphone or tablets you will be required to download and launch the free Google Home application.
Once set up, the device can be used to establish, review and update shopping lists and to do lists, medication/appointment reminders, and make calls.
Note: You cannot make calls to emergency services through the Google Home devices.
Setup instructions and assistance can be found online.
Additional examples of technology to help with dementia
The benefit of light
Sundowners’ syndrome is a condition where people with dementia experience agitation, aggression or restlessness before, during, and after sunset. While many of these behaviors start or worsen around sunset or sundown, this delirium can potentially occur at any time. Around 20% of people diagnosed with Alzheimer’s disease experience sundowning at some time.
Light therapy can alleviate some of these symptoms by exposing someone to bright light for up to a few hours. Below are some options caregivers can try with their loved ones with sundowners:
- Light therapy: Expose a person with sundowners to a bright fluorescent lamp for 1 to 2 hours in the morning to help reduce symptoms later in the evening.
- Therapeutic lights or a lightbox: Use at strategic times of day and use bright lights in the room.
- Increase indoor and outdoor lighting as it gets dark outside.
- Try different types of light bulbs that have different lighting hues.
The AAL Program
The effects of dementia can be frightening and overwhelming for those living with it and the people who care for them. Examples of a forward-thinking company making a difference is AAL Program. The AAL Program aims to create better quality of life for older people and strengthen industrial opportunities in the field of healthy aging. The program funds projects that develop products and services that help older people and their caregivers to live more connected, independent, and happy lives.
Many of the projects funded by the AAL Program aim to bring innovative products and services to these people in order to help reduce levels of stress and therefore improve quality of life. Some of these may not yet be available in the USA, but it is of value to know that they exist. (Check the AAL website to track their developments Projects Archive – AAL Programme (aal-europe.eu); some of these developments are reported at 5 Technologies that help people living with dementia b (healthtechzone.com))
Below are additional examples of the types of technology that can help people living with dementia live more independent and happy lives.
Position tracking aids – GPS trackers
Dementia is an ailment that causes a person’s memory to deteriorate badly. As a result, some people suffering from dementia-related ailments may find it hard to remember previously familiar locations and routes – even in their homes. So, it is common for some adults living with dementia to wander.
To avoid the troubles and worries that this might cause, GPS trackers can help caregivers easily tell where the patient is at any given time. Some popular names in the GPS tracker industry for dementia patients are SPOT, Spy Tec, iTraq, and Trackimo. Some trackers come as bracelets and are worn by the patient, while some can be placed in the patient’s shoes.
Time-tracking aids – Easy-to-read clocks
One of the symptoms common with people living with dementia is that they easily lose track of day and night. This can be frustrating for caregivers, especially if they have appointments or try to create a routine. To help curb this, there are easy-to-read clocks specially designed for people living with dementia.
These clocks are common calendar clocks that display the time of the day, day of the week, and date. Furthermore, these digital clocks also identify morning, evening, or noon time periods. They’re user-friendly and are much easier to read than conventional clocks.
Communication assisting technologies – Tablet computers and memory photo phones
The memory loss symptoms of dementia can make an affected individual easily confused. This symptom, in most cases, makes it impossible for the patient to hold a chain of thoughts or conversation for long. Dementia patients can now use tablet computers to help them communicate better.
The tablets come with apps built specially to help improve the quality of conversations dementia patients are capable of. Some of the apps that have been noted to have impressive results in this application are Inspire and Memory Keeper. Many of the technologies used in this aspect are focused on reminiscence activities.
Memory photo phones are phones specially designed for people with memory disorders. This technology comes into play when the patient involved has difficulties remembering phone numbers. The phones come with many buttons and can be programmed to call frequently-dialed contacts.
Also, some of these phones are equipped with clear buttons, which you can customize by placing pictures on them. This allows you to automatically call the person whose picture is on the button by pressing the button once.
Electrical appliance use monitoring can alert caregivers if an appliance is left on or off too long.